About Us

“To live is to face one problem after another. How you face them is what makes the difference.” Benjamim Franklin

Mission

Take innovative paths in search of research that benefit people who fail the DEAF1 and promote the proximity of families with scientific knowledge in order to provide ever more reliability, speed and transparency, always valuing the necessary scientific independence.

Values

One of the chapters of our Statute and our Internal Regulation defines our principles. They are stony clauses of our Institute.
They are:

I – Respect for human beings and life from conception.
II – Constant honesty and transparency.
III – Valuing the search for truth.
IV – Respect for the Environment and pursuit of ecological and social sustainability.
V – Search for quality, efficiency and constant improvement in all undertakings.
VI – Respect for the laws, norms and contracts assumed.
VII – Non-social discrimination in its language and communication pieces.

Vision

Document all the information acquired on the path in search of science in order to be a source of knowledge, procedures and methodologies for the
community of families with people who fail DEAF1 and for other communities of families with people with rare and ultra-rare diseases.
No one will be able to work as a team if they don’t learn to listen. Nobody will learn to listen if they don’t learn to put themselves in the shoes of others.”

Augusto Cury – Writer

Scientific Committee

In order to guarantee the quality of the research carried out or in which the Institute takes part or is interested in promoting, our Scientific Committee and our Family Advisory Committee work together, analyzing, supervising, guiding and validating all the projects chosen as being of interest to the Institute. .
Ana Maria Caetano de Faria - Phd

Ana Maria Caetano de Faria - Phd

Professor of Immunology at UFMG, coordinator of the Sub-committee of Mucosal Immunology Nomenclature at IUIS.

Caio Robledo Quaio - Medical Geneticist

Caio Robledo Quaio - Medical Geneticist

Hospital Israelita Albert Einstein/SP and Faculty of Medicine of USP
Daniel Martins-de-Souza - Phd

Daniel Martins-de-Souza - Phd

Professor of Biochemistry at UNICAMP, Leader of the Neuroproteomics Laboratory and researcher at the Experimental Medicine Research Cluster (EMRC).
Lehyla Calero - Mestre em Saúde ambiental

Lehyla Calero - Mestre em Saúde ambiental

Public Health – Columbia University/USA
Julino Rodrigues

Julino Rodrigues

PhD researcher in public health with a specialization in social participation Cepedisa/USP

Family Advisory Committee

Ana Karine Bittencourt

Ana Karine Bittencourt

CEO of the DEAF1 Institute. Journalist and Advertiser. Mother of a boy with deaf1 gene fail
Felipe Mascarenhas

Felipe Mascarenhas

Physiotherapist. Father of a boy with deaf1 gene fail
Juliana Cola

Juliana Cola

Otorhinolaryngologist. Mother of a boy with deaf1 gene fail
Mariana Mascarenhas

Mariana Mascarenhas

Physiotherapist. Mother of a boy with deaf1 gene fail
Tatiana Tamballo Florido

Tatiana Tamballo Florido

Fiscal Director of the DEAF1 Institute.
Teacher. Mother of a boy with deaf1 gene fail
Thaís Santos

Thaís Santos

Mother of a girl with deaf1 gene fail

Board of Directors

Ana Karine Bittencourt

Ana Karine Bittencourt

President Director.
Mother of a boy with DEAF1. Journalist and publicist.
Maria Sheyla Santos

Maria Sheyla Santos

Director Vice President
Social Worker
Maria Inês Bittencourt

Maria Inês Bittencourt

Tax Director
Grandmother of a child with deaf1 gene fail Real estate agency

Board of Directors

Kênia Camara

Kênia Camara

Board Member
Human Resources Specialist
Laura do Nascimento Pertence

Laura do Nascimento Pertence

Counselor
Psychologist
Andréa Kasmim Barcellos

Andréa Kasmim Barcellos

Counselor
Pediatrician

Fiscal Council

Gustavo Tourinho

Gustavo Tourinho

Board Member-President
Attorney
Tatiana Tamballo Florido

Tatiana Tamballo Florido

Counselor
Teacher and mother of a child with deaf1 gene fail
José Marcelo

José Marcelo

Counselor
Journalist and Acupuncturist
Júnia Rachel Andrade

Júnia Rachel Andrade

Alternate Advisor
Interior designer
Audeíres Ferreira Guedes

Audeíres Ferreira Guedes

Substitute board
member Accountant

Information Technology Volunteering
and Multi-languages

Juliana de Faria Santos

Júnia Rachel Andrade

Fluent in Portuguese, English and French.
Brazilian and Canadian citizen.
Information Technology
Specialist Aunt of a boy with deaf1 gene fail
Marcus Cardoso

Marcus Cardoso

Systems Analyst Systems
Developer at Sicoob

Transparency

DOCUMENTS

Statute – updated in 2021

Código de Ética – Code of Ethics – updated in 2021 em 2021

BALANCE SHEET AND TRIAL BALANCE SHEET (published in the DO/DF)

Accounting Balance – 2020

Trial balance first quarter of 2021

Balance sheet second quarter of 2021

Balance sheet third quarter of 2021

Balance sheet 2021

ACTIVITY REPORTS

2022

2020 and 2021